Day 6 – #NHBPM – News Style Post


 

National Health Blog Post Month!

 

Since the explosion of the world wide web, many people have turned to going online to look for help for problems.  For many people with IBD, going to a doctor doesn’t always help.  They treat the physical problems, sometimes, and very rarely treat the mental problems.  Because of the lack of a bedside manner, patients with IBD look for treatment online in the form of forums, social medias and medical based sites.

One new site designed to help those with many illnesses, including IBD is http://www.meddik.com.  This is a new site which just came on the scene.  It was developed by 2 medical students, one of which has a relative with IBD.  The site is a user based site but also carries links to medical articles.  The design behind the site is that you can research not just the inner workings of your disease but get first hand help from people who also suffer from the same.

Another site, with a heavier user base is http://www.crohnology.com.  This site is made so that you can connect with people who not only have your disease but live near you.  You can also ask questions to everyone on the site.  You can look up people taking the same meds as you or have the same side effects or even symptoms.

If you are looking for an upbeat site with a dose of comedy, turn to http://www.ihaveuc.com.  Adam has UC and treats his disease with comedy.  He believes that laughter heals.  He also has on his site a place to post and answer questions from other IBDers.  Adam also post informative information about the disease and the treatments used.

If you’re looking for a feminine side to IBD, there is no shortage of that either.  Sara at http://www.inflamed-and-untamed.com is probably the most recognizable face for IBD.  She talks about a lot of personal dealings with Crohn’s and having a J-Pouch.  She has become an inspiration to so many people and when she is ill, she in overwhelmed with well wishers.

Another person who is big on helping others is Kelly.  She has a page on Facebook called I-Have-A-Bad-Tummy-With-An-Optimistic-Mind-Chronic-Illness-Support.  Kelly is the face of being brave and strong with IBD as she has been very sick this year but still manages to come online to help others.  She is yet another big inspiration to many.

If you have an ostomy and love videos then check out Maggie at www,youtube.com/LetsTalkIBD.   She shows everyone that just because you don’t have part or all of your intestines doesn’t mean you can’t live life.  She shows that you can do whatever you want to do, whether it is swimming in a bikini or going to college.  Your life doesn’t stop just because you wear a bag on your side.  In fact she shows just how life is just starting after surgery.

Are you athletic?  Do you have IBD?  Well, your life isn’t over.  Brian at http://www.intenseintestines and Heidi from http://www.ostomyoutdoors.com both show that just because you have a disease doesn’t mean you can’t enjoy exercise.  Whether it is hiking, running or biking..you can do it all.

With so much help out there online doctors need to step up their game.  They can’t give the advice that any of these sites can offer.  Most doctors don’t have enough time to spend with their patients to find out what is going on in their minds.  It is no wonder why everyone turns to the internet now.

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Follow Friday for Oct 19th


This has been a busy week for me.  Three blogs in one week..wow.  I was going to hold off on this one, but I felt like I wanted to put down what was fresh in my mind.

Last night,  I had the pleasure of being in a focus group for a brand new website.  It is still in its infacy and still trying to improve itself.  But from what I see of it, it will go far.  The website I had the honor to advise on is www.meddik.com.  If you visit this right now, please please please remember that it is still being tested out so if you have problems let them know and give them some time to improve.

The site right now is based on people with Crohn’s, Colitis, and Celiac disease.  But, anyone with any medical condition can go on it.  There are posts from people with these diseases looking for help and advice.  You can ask questions or answer others.  One feature of theirs right now is that everyone for the most part is anonymous.  That was one of the features we discused in the group and this might change.

One good article about this site was written here http://mashable.com/2012/05/29/meddik-video/.   Lauren Hockenson talked with the co-founder Tim Soo and I thought this article best explains the site better than I could.  I got to meet Tim last night and he is a really outgoing overall nice guy.

Now I know there are a lot of sites out there to get info and many more social sites.  What will make this site different and better is that it will kind of work like Google.  It will find results based on your preferences.  You can filter what your needs are and it will find results that are like you and others that are realted in a sense.  Do if you put a filter to look for Crohn’s Disease, it will pull and show you posts for CD.  It will also find ones for IBD, Colitis, etc but …it will let you know how many finds are for your direct filter and how many are sort of related.

So, go check them out and let them know how you like it.  If you really have strong feelings on how to help them, you can email me and I will forward it to them.  Sometimes emails are better than a message on a website.