Meet Dr. Frank J Sileo


In an effort to switch things up and get you, my readers, more involved, I have brought in a great person to hopefully shake things up here.

I want to introduce Dr. Frank J Sileo.

Frank

Dr. Frank J. Sileo is a New Jersey licensed psychologist and is the Founder and Executive Director of The Center for Psychological Enhancement, LLC located in Ridgewood, New Jersey.  He works with children, adolescents and adults. He received his Doctorate in psychology from Fordham University in New York City. He received his Master of Science degree from Fordham University and his Bachelor’s degree from Iona College in New Rochelle, New York. Dr. Sileo has been in private practice in Ridgewood, New Jersey since 1995. Since 2010, Dr. Sileo has been consistently voted one of New Jersey’s Favorite Kids’ Docs by readers of New Jersey Family magazine.

Dr. Sileo is an award winning author and an active public speaker. He is the author of five, soon to be seven children’s picture books: Toilet Paper Flowers: A Story for Children about Crohn’s Disease, Hold the Cheese Please! A Story for Children about Lactose Intolerance, Bug Bites and Campfires: A Story for Kids about Homesickness, Sally Sore Loser: A Story about Winning and Losing and Don’t Put Yourself Down in Circus Town:  A Story about Self-Confidence. Sally Sore Loser is the recipient of the Gold Medal Award from the prestigious Mom’s Choice Award.  His sixth children’s book, to be released in February 2017 is on teaching mindfulness to kids.  His seventh children’s book on a type of bullying will be released in the fall of 2017. He has written extensive general interest articles and has been quoted numerous times in various local and national newspapers, magazines, podcasts, websites, radio and television.

Dr. Sileo will be posting on here from time to time.  You may be wondering what makes him qualified to talk to you about IBD.  Well, that is easy to answer.  He is a Crohnie.  He has also on the board of CCFA in NJ and nationally. He speaks across the country for CCFA on the psychological effects of IBD on patients and caregivers.

Let’s welcome Dr Frank Sileo aboard and feel free to leave a comment if you want him to discuss anything specific.

Juicing – Good or Bad


Juicing

This morning I was looking at Twitter and I saw a tweet that said that juicing really isn’t good for you and lead me to this article.  I know many an IBD that swear to juicing so of course I had to take a look.

Of course like most click baits these days, the article wasn’t quite what was being described.  It goes on to say that juicing as a form of detoxing the body doesn’t really work.  Of course, this isn’t news to me because if you know anything about nutrition, fruits and vegetables while good for you, can actually be harmful in large quantities.  There is the sugar contents and carbs.  I very rarely touch any juice as it also doesn’t have as much vitamins or fiber then if you eat the actual fruit since most of the nutritional elements are in the skin and the skin a lot of times doesn’t make it into the juice.

The reason behind this post is because when I first saw the whole good or bad, I thought right away to all of my IBDers that juice and to them it is a life saver.  Many people can’t tolerate or digest whole foods.  Juicing is a big way for many of us with digestive issues to get our calories and vitamins.  Of course, those needing this make their own juice and usually will have the skin as apposed to the commercial juices that don’t have them.

I actually got angry over the tweet because it should have been said differently.  To just say it isn’t good is very misleading.  The tweet didn’t mention detoxing.  If it did, I would have ignored it.  Instead, it was something just put on the surface which will somehow eventually be taken out of context.  And then, this will lead to people thinking less of those of you that juice for your health.  And also, if you look really fast at the article, which I just did, the first thing you see is Juicing is Officially Dead.  Well, not for my IBDers, I can tell you that.

The one good thing that they do say in the article is this, and it comes at the very end,

Juice still has its benefits. Juice squeezed from fresh fruits and vegetables is more nutritious than sugary, whipped-cream-topped Frappuccinos. It’s also a convenient way to consume healthy foods on-the-go: I wouldn’t gnaw on a carrot or a beet on my morning commute to work, but I’d certainly sip them through a straw.”

So how many of you juice?  What has been your experience with it?  Why do you juice and what is your favorite recipe?  I would love to hear from you and hear about your experience.

juice

 

 

Upcoming Blogs


Just a quick update.  I am looking to start writing again and I would love to change my format a little.  I want to get you, my viewers, more involved.  So, here is what I want to do.  I am going to list some things I will be writing about soon and I would love for you to let me know if you have any experience or stories you want to share.  You can email me at aguywithcrohns@gmail.com.  It can be a couple of sentences or a couple of paragraphs.  I will respond to you and if I choose to publish what you wrote, I will get your approval first.  I would never publish anything without permission.

So what will I be talking about.  Well, if you have anything to say about the following, let me know:

IBD and arthritis

IBD and weight loss or gain

IBD and depression

Starting a new job with IBD

For now, that is all I have in the works, but of course, if you have an topics you would like me to talk about, let me know.  I look forward to hearing from everyone with their stories and ideas.  Can’t wait to see what we can all transform this blog into.

Barney

 

IBD vs IBS


Going through Twitter I see that April is IBS Awareness month.  Now I know, I have IBD and yes I know there is a difference between the two.  I thought in honor of the month, I would post this chart from The CCFA comparing the two.

IBS

I think people need to know that there is in fact a big difference between the two.  IBD or Inflammatory Bowel Disease is chronic and can cause some serious damage to your body.  IBS or Irritable Bowel Syndrome is a functional disorder that causes inflammation but no permanent damage.  The biggest difference, which isn’t on the chart because there are people that will disagree, but IBD can kill where IBS can’t.

Early Resolutions for the New Year


This week is IBD Awareness Week.  I haven’t done much or even been on this blog for a long time.  But, I wanted to write something up for this week and there is something that has been on my mind.

Part of living with IBD is that you can’t always do what you want to in life.  Sometimes the pain and the constant bathroom trips stop you from doing things.  Well, for me that is going to change.

Lately I have been hearing the song I Lived by OneRepublic a lot.  Part of the chorus has really stuck in my head.  It is “I, I did it all.  I, I did it all.
I owned every second that this world could give.  I saw so many places, the things that I did.  With every broken bone, I swear I lived.”

I thought back on my life so far.  I have done a lot and have traveled to many places, but I really haven’t lived life or owned every second.  This actually bothered me when I thought about it.  I thought why can’t I?  Just because I have a disease doesn’t mean I shouldn’t live life.  So, going forward I refuse to let this disease stop me from doing anything.  It might slow me down some times but it won’t stop me.

I posted on my Facebook account a list of things I want to accomplish within the next year.  I want to share that list again here.

  1. Finish school with a B average (I can’t get an A anymore but I can work on the B)
  2. Find a job that I enjoy doing (We should all enjoy the work we do)
  3. Pass 2 IT certificates (This goes hand in hand with 1 & 2)
  4. Get in shape
  5. Lose weight
  6. Make a new friend (We can never have too many friends)
  7. Travel somewhere I have never been before
  8. Read at least 5 books (Knowledge is power)
  9. Learn to ski (I have wanted to do this for over 20 years.  Anyone want to teach me?)
  10. Bring IBD awareness to more people

To start of my list, here is some information from The Intense Intestines home page.

IBD FACTS

It’s estimated that around 1.4 million people are affected by an IBD condition in the United States alone.

In the U.S. about 100-200 people per 100,000 are affected with ulcerative colitis.

And 30-100 people per 100,000 are affected by Crohn’s disease.

Crohn’s can affect all areas of the digestive tract.  The digestive tracts covers the following areas

Mouth, Esophagus, Stomach, Small Intestine, Large Intestines, Rectum and Anus.

Ulcerative colitis just affects the following areas:

Colon, Rectum, and Anus.

What Causes Inflammatory Bowel Disease:

Unfortunately, no one knows exactly what causes IBD.  All we know is that something in your body causes your immune system to overreact.  Different stimuli may be the cause of IBD in different people.  For instance it might be a kind of bacteria, something in your own intestines or even your family history.

In fact scientists now believe it is a combination of all these factors.  if youhave IBD, you may have inherited a unique gene in your immune system.  Then something happened to trigger that gene, causing the overreaction, which then cause the inflammation in a patients intestines.

Who Gets IBD:

IBD can be found in both men and women.  it may run in families, in fact 20% of people diagnosed with the disease have a blood relative with some form of IBD.

It is usually diagnosed between the ages of 20-30, all though people of all ages can suffer from an IBD.  People of Jewish heritage have a greater rush of developing the disease while people of African American heritage have the least amount of risk.

Symptoms:

Abdominal pain and diarrhea are the most common symptoms of IBD.  Other symptoms include rectal bleeding, weight loss, arthritis, skin problems, inflammation of the eyes and fever.  The range of severity of symptoms can vary.  A diagnosis of IBD may involve blood tests, stool tests, upper GI, colonoscopy, sigmoidoscopy, or biopsy.

IBD-Facts-symptoms-awareness-week-13

2015 Super Bowl Pool ~ for The Intense Intestines Foundation


This is something I have been wanting to do for a while but never seemed to make the time for it.  So, this year I am doing it.  I am holding a pool for the Super Bowl.  50% of the money raised will go to The Intense Intestines Foundation, a charity that helps people with Crohn’s Disease, Ulcerative Colitis, and Ostomies.  The other 50% go to 4 winners.

I am selling boxes for $10 each.  I will pick the box for everyone so it will be random.  There will be a winner for each quarter, so 4 winners.

Super Bowl Pool 2015If you would like to buy a box, or 2 or 10, let me know.  To make payment easy, I am using Paypal.  You can send the money to aguywithcrohns@gmail.com.

If you have any questions about this, please let me know or email me at aguywithcrohns@gmail.com.

2014 in review


The WordPress.com stats helper monkeys prepared a 2014 annual report for this blog.

Here’s an excerpt:

The concert hall at the Sydney Opera House holds 2,700 people. This blog was viewed about 13,000 times in 2014. If it were a concert at Sydney Opera House, it would take about 5 sold-out performances for that many people to see it.

Click here to see the complete report.