Upcoming Blogs


Just a quick update.  I am looking to start writing again and I would love to change my format a little.  I want to get you, my viewers, more involved.  So, here is what I want to do.  I am going to list some things I will be writing about soon and I would love for you to let me know if you have any experience or stories you want to share.  You can email me at aguywithcrohns@gmail.com.  It can be a couple of sentences or a couple of paragraphs.  I will respond to you and if I choose to publish what you wrote, I will get your approval first.  I would never publish anything without permission.

So what will I be talking about.  Well, if you have anything to say about the following, let me know:

IBD and arthritis

IBD and weight loss or gain

IBD and depression

Starting a new job with IBD

For now, that is all I have in the works, but of course, if you have an topics you would like me to talk about, let me know.  I look forward to hearing from everyone with their stories and ideas.  Can’t wait to see what we can all transform this blog into.

Barney

 

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What Is Wrong With Me??


Have you ever asked yourself this question? You can be sitting there, just trying to think of a word that has slipped your mind and you think what is wrong with me. Or you can be seriously ill, can’t get diagnosed by a competent doctor and again, you ask the question.

These past couple of months have been very busy. I am sorry I haven’t kept up with this blog. When I last left off, I was in the process of changing GI doctors. Since then, I have seen the new GI, been in a bad flare, and have had knee pains from arthritis every day. My body feels like it is falling apart and I have started to ask, what is wrong with me? I used to be able to do so much.

So much is happening in my life and I don’t even know where to start. For my Crohn’s, around February or March (can’t remember when) I went off the gluten free diet. Since then I have slowly felt sick again, entering into a flare. When I saw the new GI, he wanted to try some other meds, including Prednisone. I kind of talked him out of it as I don’t react well to it. He allowed me to just take Immodium. Hopes were that this would slow the diarrhea, help hydrate me, and ultimately help me heal. After a week of that, I failed at it. It’s been about a month and I am doing better, but still flaring. I see him again in November and I worry what the results of the meeting will be. I am thinking of going off LDN and trying a new biologic. What is really comes down to is that I think ultimately I will have to keep a gluten free lifestyle for the rest of my life…and that doesn’t make me happy.

One good thing that has happened lately, is that I participated in a research study from 23 and Me (https://www.23andme.com/ibd/). From this research I found out so much about my DNA. First, I found a second cousin which has led me to find out so much about a part of my family I didn’t know existed. So Cool!! Also, from this, I was able to have my DNA analyzed (www.promethese.com). I found out from there that I am more prone to get Crohn’s Disease (really??) and that I have a higher chance of being a celiac. Gluten Free is really sounding like it is the way to go.

The third major part of my life is my knee. I have developed arthritis in my knee. Physical therapy didn’t help one bit. Every day I am in pain. I hate it and now I have to decide what is the best course of action. Do I get injections for years which only helps temporarily? Or do I insist on a knee replacement, which means surgery. It means hospital stays, rehab, and missing work for who knows how long.

When did I get old? When did my body start to betray me? What is wrong with me? I wish I had answers to my health. I know many of you with IBD wish you had answers for your issues.  So now I want to know…how do you feel?  What is wrong with you and what are you doing to fix the situation?  Do you have any suggestions for me?