IBD Support


If you haven’t already, head on over to The Crohn’s Forum to check out my latest post for them about IBD Support.  It can be found here.

 

 

IIF-Never-Stay-Quiet

 

Now that you have come back, let me update you a little more.  Since the climb, I have done even more support for the IIF.  This past Wednesday, the IIF had their first support/meetup group.  I had helped in organizing it and getting it together.  Sadly there were only 3 IBDers that showed up, but it was a start.  And I do have to say that the people who did come were amazing.

One girl who came was 15 but looked 12.  I thought this group would be a little out of her league when I first saw her, but after she opened her mouth I was amazed.  Now, I feel that when you run a support group, you should be the inspirational person.  You should be the one to install confidence in others and help guide them on their journey.  However, I felt humbled when this girl spoke.  She was the bravest 15 yr old I have ever met and had the best outcome on life.  She clearly was not going to let IBD stop her from living.

Another person that was there was just the opposite.  He had never been to a support group before and was still a little new to IBD.  He hadn’t really opened up yet about it with others.  Thankfully, we all have been there so we were all comforting to him.  So much great advice flowed from us that I hope he feels a lot more confidence in living his life with IBD.

The third person that showed up was someone I convinced to come.  I met her on the climb and I wanted to have someone who was at a point in their life where they were comfortable with their IBD to really open up. I think her story is definitely a great one and I think she helped the others in understanding this damn disease  a little better.

This was the first group.  We will be having one every month and I already can’t wait for the next one.  Hopefully we will have more people there.  I love hearing the different stories and journeys people have taken.   If you are in the Northern New Jersey area, and want to attend, let me know.  I will give you all the information.

 

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This is just a little post to let you know of some more good things happening.  Recently I was asked to do a monthly post for The Crohn’s Forum’s blog page.  So far there are three others doing post’s for them and many of you will know these names.  They are Jackie from Girls With Guts, Jessica from Uncover Ostomy, and Kathleen from Crohnological Order.

So far all of the post’s I have done for them have been different from what I post on here, and that has been the challenge for me.  As you know, my posting have declined lately.  One of the reasons for that is I don’t know what to talk about.  I have been very busy lately and haven’t had time to focus on my disease.

So, I know I have asked in the past…but what would you want me to talk about.  Are there any topics I haven’t covered that you would want me to talk about?  I am pretty open to anything and as you know, I won’t hold back.  While you think about it, go check out the Crohn’s Forum’s blog site and while you are there check out the rest of the site.  You might meet some new people there and find a new friend.

I do have to say, one really cool thing about their site is their doctor directory.  They have a list of doctors from all over the world with reviews from patients.  If you need to find a new doctor, this can be a great tool for you.