What’s a day that you wish you could have used a pain-free pass (either in the future or the past)? How would being pain or worry-free impact that day?
As most of you know, I don’t get too much pain from my Crohn’s. I know there are many out there that have pain all the time. Whether it is from strictures or inflammation or obstructions, pain is a reality with IBD. Since I have a mild case, I have been spared the pain…most of the time.
There are some days though we I feel some pain. For me it feels more like someone touching an irritation. It is usually dull and annoying. When I do get these pains, I worry a little because since I don’t normally get them it is usually a sign of a flare or that I am getting sick.
So to answer the first part of the question, I can’t say of any day I wish I didn’t have pain. It isn’t really part of my life. In fact part of me likes it because it is like a signal that something is about to happen.
Now if we talked about having a symptom free day….that is another story. I don’t have pain, but I can go to the bathroom a lot at times. I get run down and lazy. My eyes are getting worse. Rashes don’t heal as fast. My joints ache at times. I would gladly give all of this up. If I had to pick one day, I don’t think I can. I think a lot of people might say that for their wedding day they would like to be symptom free. I know for mine, I was so happy that I didn’t feel nervous so I didn’t have a lot of symptoms that day.
Thinking about my life, I can’t pick just one day where I would like to be symptom or pain free. Of course I want to, but I just can’t pick One day. There are times though when I read online when some people have really bad days. There are days when I read about Kelly, a fellow IBDer who suffers from so much and is always in pain. On her worse days, I feel like I want to take that pain from her…even if it is just for one day. I think the activist in me wants to help so I would want to take some of the pain from those that can’t deal. I wouldn’t mind a day in pain here and there if it meant someone else can be pain free for a while.
This is a nasty disease. It robs us of so much. I just would like to be able to give some people back a normal life so they can enjoy what I have been lucky to enjoy. Everyone deserves to live pain free.