The Health Activist’s Writers Month Challenge – Day 12 Hindsight

If you could go back in time and talk to yourself (or your loved one) on the day of diagnosis, what would you say?


This is a pretty powerful prompt today.  If I could go back in time to talk to myself, my whole life would be different.

First, I was never really scared so I would be there to calm myself.  I think the biggest thing that was going through my head was just wondering what was wrong.  I remember just when I got my diagnoses.  I remember sitting in my bed, being handed some pamphlets and just having a blank stare of bewilderment.  This was all new to me and I had never heard of Ulcerative Colitis or Crohn’s Disease.  I think I was more confused than scared which caused me to deny what I had.

So if I had a future me to talk to, I think it would have been great.  I would sit with myself and explain just what it is I have and how it is going to affect me.  I would explain to myself in basic terms what it is that I have and correct the initial diagnoses.  I remember being told I had UC, because later on when I found a regular GI, not a Pedi GI, he would tell me I have CD because he saw it in my ileum. 

Next I would explain to myself that I am not alone.   I went through life for many years not knowing or talking to anyone that had IBD.  I felt very alone in the world with my disease.  This past year and a half I have met hundreds of people with IBD and I now know I am not alone.  Now of course I was diagnosed pre-internet so I still would have to wait to really meet everyone.  I would however encourage myself to get more involved with CCFA.

Lastly, I would prepare myself for the meds.  I have not had success with medicine and I it has cause a lot of frustration and stress on myself.  I would prepare myself for this.

Now, I know many people would think that if they could go back in time and talk to themselves, that they would probably do most of the same things.  But I would do one more thing.  I would guide myself in job choices and give myself some winning lottery numbers.  Come on, if I could go back in time, I might as well make it worth my while 🙂


3 comments on “The Health Activist’s Writers Month Challenge – Day 12 Hindsight

  1. […] Jeffrey – @JavaJay73 and his post on hindsight. […]

  2. smitham90 says:

    What a great post. I think it’s crazy how so many of us are in the same boat. This “invisible” and “silent” disease encourages us to be silent. In the beginning I wish I would’ve looked for the people that I now rely on: my doctors, family, and the internet friends I constantly read. I believe I would’ve understood the disease more and taken it more seriously if I had done this. I also think that together we can make a difference…especially if we all had those winning lottery numbers.

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