Create a “care page” – a list of your best resources that someone who is newly diagnosed could go to when starting to advocate for themselves or a loved one. Remember to include sites that lead to successful self advocacy!
I won’t say much here today. I am going to let my fellow activist to all the talking. So here are some links to some great people and great sites. Some you might know, others you are finding for the first time. Enjoy.
Inflamed and Untamed – www.inflamed-and-untamed.com
Blood, Poop & Tears – www.bloodpooptears.com
The Great Bowel Movement – www.thegreatbowelmovement.org
The United Colon Blog – www.ucvlog.com
I Have UC – www.Ihaveuc.com
Girls with Guts – www.girls-with-guts.org
The Crohn’s and Colitis Foundation of America – www.ccfa.org
Love For Mutant Guts – www.loveformutantguts.wordpress.com
Intense Intestines – www.intenseintestines.org
Chronology – www.chrohnolgy.com
Karen Langston – Mind, Body, Soul – www.karenlangston.com
Crohns Disease Warrior Patrol – www.crohnsdiseasewarriorpatrol.org
My Journey With Crohns – http://www.myjourneywithcrohns.com
The Crohn’s Diaries: Living Sick with Inflammatory Bowel Disease – http://livingsick.com/
There are so many more that I could put down, but I would be typing for days. So go check out these sites and from there you will find many others. Have fun and let them know how you found them.
This is great! I’ll mention your site on my BlogTalkRadio (and to my patients who need to get the information and connections) show next Tues, as I did on April 2. Dr Synonymous.