Recently, I watched a video from a fellow IBDer and she was talking about seeing other people do amazing things like running races and she was at a point in her life where she couldn’t do those things because of her fight with IBD. I wrote her a letter to help cheer her up and as I was writing it, I realized how much of an inspiration she really had been to me. She was one of the first people I watched on YouTube when I started flaring last year. She showed me that even though we have a chronic illness and it can affect us greatly at times….we should still live our lives.
When I wrote her, I also came to another realization. I have never had a mentor in my life. Whenever I had started a new job, so one ever took me under their wing. I never really had anyone I could say that I truly looked up to. But, she really changed my life and I always find myself looking at what she is doing and try to be a little like her or more specifically, try to be like her in helping people with IBD. To this end, she has kind of been like a mentor to me even though she didn’t know it.
Now, she isn’t the only one that has inspired me. There are so many people out there and if you look back over my blog, you will see who they are. Some of them I have written about. Others, I have included in my “Follow Friday’s”. There are so many great people out there advocating and giving me inspiration to get on with my life.
Recently, I have been starting to flare again and I felt some depression setting in. As usual, I started to withdraw within myself like I used to. But then I saw that video and wrote my online friend. I wrote her to cheer her up but it also was very therapeutic to me. I was able to get some things off my chest. Realizing how much of an inspiration she was in the past, helped to inspire me again. So, I am back fighting again.
Next week is a big part of the battle for me. I see my GI and I will be asking him to switch my meds from Humira to LDN. Since this isn’t a typical treatment for Crohn’s just yet, it will be a battle, but I am ready. If I let the depression sink in, I wouldn’t be able to have the conversation with my GI and argue it effectively. But thanks to my inspiration..I am going in guns blazing.
So, now I ask…..who are your inspiration. I would really love to hear back from you on who inspires you. Whether it is just to continue your fight with IBD, or someone who pushes you to blog, or helps you to get out and about with your life. Is your inspiration a person, a group of people, or a website?
I want to leave you with a quote I found online about inspiration:
“Inspiration is like picking up one of those blinky things in a video game that makes you invincible for a while. You can do anything, go anywhere, and you don’t have to worry about it.
Those blinky things exist in real life too. It may be a picture, or some words, or a sound, or an idea, or a mistake, or a moment. Whatever it is, pick it up and run with it. Run with it like you stole it.
You can’t bottle up inspiration. You can’t put it in a ziplock, toss it in the freezer, and fish it out later. It’s instantly perishable if you don’t eat it while it’s fresh.
Inspiration is a magical thing, a productivity multiplier, a motivator. But it won’t wait for you. Inspiration is a now thing. If it grabs you, grab it right back and put it to work.”
And just incase you are reading this and trying to figure out who my inspiration is…I wasn’t going to say because I don’t like to mention people’s names on here …but it is Sara from Inflamed and Untamed.
Really well written my friend, I am so glad you found inspiration, it starts as they say a small snow ball and just creates an avalanche! These people are an inspiration to me and many other unity is key and good health to you all.
People like you inspire me. I am newly diagnosed with Crohn’s after a stay in the hospital that made me want to die. My mom inspires me, no matter how weak I felt or when I thought I couldn’t keep going, she knew I could. Having someone there that knows what you can do and how you are helped me keep from getting depressed. The day after I got out of the hospital – she even took me to the farm where I keep my horse and put me on him, knowing that was what I wanted. Sometimes I am the most inspired by the people that make the most effort to understand,
I am so sorry that you have had such a bad time with your disease. I think we all know how you feel as we all go through some depression with this disease. I think it is great that you have a good support system with your mom. It is hard for parents to truly understand what we go through and it is hard to talk to them sometimes. I remember as a teenager, I wouldn’t want to share anything with my parents. It was too embarrassing. Just know that there are a lot of people out here to help you out with support or education or just to listen. Your not alone and never have to be.
And I have to say…I am jealous. I haven’t ridden a horse since I was a teenager. Your very lucky 🙂
Inspiration and depression are very similar beasts… they each need only a small seed to get started, and once planted, will grow wildly so long as they receive food and attention. You are wise to know which to be supporting!
I’d love to hear more about how your discussion re: LDN goes with your doc. I can tell you that most of the conversations I’ve had with MD’s didn’t go so well. I started seeing an ND for most of my primary care, and he’s totally on board with it.