Inspiratation – Where do you find it?


Recently, I watched a video from a fellow IBDer and she was talking about seeing other people do amazing things like running races and she was at a point in her life where she couldn’t do those things because of her fight with IBD.   I wrote her a letter to help cheer her up and as I was writing it, I realized how much of an inspiration she really had been to me.   She was one of the first people I watched on YouTube when I started flaring last year.  She showed me that even though we have a chronic illness and it can affect us greatly at times….we should still live our lives.

When I wrote her, I also came to another realization.  I have never had a mentor in my life.  Whenever I had started a new job, so one ever took me under their wing.  I never really had anyone I could say that I truly looked up to.  But, she really changed my life and I always find myself looking at what she is doing and try to be a little like her or more specifically, try to be like her in helping people with IBD.  To this end, she has kind of been like a mentor to me even though she didn’t know it.

Now, she isn’t the only one that has inspired me.  There are so many people out there and if you look back over my blog, you will see who they are.  Some of them I have written about.  Others, I have included in my “Follow Friday’s”.  There are so many great people out there advocating and giving me inspiration to get on with my life.

Recently, I have been starting to flare again and I felt some depression setting in.  As usual, I started to withdraw within myself like I used to.  But then I saw that video and wrote my online friend.  I wrote her to cheer her up but it also was very therapeutic to me.  I was able to get some things off my chest.  Realizing how much of an inspiration she was in the past, helped to inspire me again.  So, I am back fighting again. 

Next week is a big part of the battle for me.  I see my GI and I will be asking him to switch my meds from Humira to LDN.  Since this isn’t a typical treatment for Crohn’s just yet, it will be a battle, but I am ready.  If I let the depression sink in, I wouldn’t be able to have the conversation with my GI and argue it effectively.   But thanks to my inspiration..I am going in guns blazing.

So, now I ask…..who are your inspiration.  I would really love to hear back from you on who inspires you.  Whether it is just to continue your fight with IBD, or someone who pushes you to blog, or helps you to get out and about with your life.  Is your inspiration a person, a group of people, or a website? 

I want to leave you with a quote I found online about inspiration:

“Inspiration is like picking up one of those blinky things in a video game that makes you invincible for a while. You can do anything, go anywhere, and you don’t have to worry about it.

Those blinky things exist in real life too. It may be a picture, or some words, or a sound, or an idea, or a mistake, or a moment. Whatever it is, pick it up and run with it. Run with it like you stole it.

You can’t bottle up inspiration. You can’t put it in a ziplock, toss it in the freezer, and fish it out later. It’s instantly perishable if you don’t eat it while it’s fresh.

Inspiration is a magical thing, a productivity multiplier, a motivator. But it won’t wait for you. Inspiration is a now thing. If it grabs you, grab it right back and put it to work.”

 

And just incase you are reading this and trying to figure out who my inspiration is…I wasn’t going to say because I don’t like to mention people’s names on here …but it is Sara from Inflamed and Untamed.

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Iota Beta Delta – This one is for the women


I decided to post this for 2 amazing health activists.

 

This one if for all the ladies out there with IBD or any chronic illness.   Are you in college right now but don’t feel like you can join a sorority because your illness won’t allow you the time.  Or did you not have the chance to do it while you were in college but now your out and you want that feeling of sisterhood.   Maybe you’re at the point where you can’t even go to school right now because of your illness.

 

Well, Maggie and Kelly have started a sorority just for you.  It is called Iota Beta Delta (IBD).    This is not an actual accredited sorority but they want to give that feeling to the women that couldn’t join one for whatever reason.

Check out their site at http://iotabetadelta.webs.com.

The Men of IBD


Today is Friday. So that means it is my time for suggestions on who to follow and read. This week, I want to highlight the men of IBD. There are so many good men out there advocating that I couldn’t even begin to name them all. I will tell you of some of them and if you know of anymore or want them highlighted in the future, drop me a line at aguywithcrohns@gmail.com and I will post them in a future post. So without further delay here is my list of The Men of IBD.

http://www.ihaveuc.com/ – Meet Adam. He has written books. He has YouTube videos. He has a website dedicated to helping people with UC. He also has Ulcerative Colitis.

http://www.crohnsdiseasesn.com/ – This site is run by a number of moderators but was started by Jason Leitman. He also has a group by the same name on Facebook. Check it out.

http://www.intenseintestines.com/ – This site was started by Brian Phillip Greenberg. He has IBD and doesn’t let it slow him down. He runs, hikes, climbs..he does it all. He is an inspiration for all of us. He shows us that even though we have a chronic disease, we don’t have to let it run our lives.

http://crohnology.com/ – This site was started by Sean Ahrens. This is a great site to help meet people with IBD in your area.

http://www.crohnsdiseasesupport.co.uk/# – This site is run by Peter Buckers. This website shows that IBD is not just a local disease but worldwide. He also runs a great Facebook page called Bowel Disease One Global Family.

http://storify.com/SCDPat – Pat Leger. You see him all over. He is on Facebook and Twitter. If you see him, say hi..he is such a great guy. He is also known for being very successful on the SCD diet.

http://beingapatient.blogspot.com/ – Michael Seres aka the guy with the intestinal transplant. Read what it was like to go through intestinal failure and a transplant while also fighting IBD.

http://www.foulbowel.com/ – John Bradley. If you haven’t read his book yet, read it. It is about his experience with IBD.

http://ucvlog.com/ – I was on the fence to include this one today, but I will. It is a great site, but I was on the fence because 2 people run it, one of which is a woman. But the other is a great guy – Dennis Frohlich. Nadia – You are wonderful too 🙂 Both have IBD and make some great video’s.

Well, that is my list for today. Again, if I missed anyone let me know. If you have a website, send me a link to check out. Have a great weekend and hopefully it is a pain-free one.