Day 22 #NHBPM – What Am I Thankful For?


Today is Thanksgiving in the United States.  It is a time when the Pilgrims came together peacefully with the indians in the area and had a feast for the fall harvest.  Over time, it has become a holiday where we look back at our lives and give thanks to the things we have.

So what am I thankful for this year?  There is so much to give thanks to.  I can give thanks to my doctor.  With so many unsympathetic doctors out there that don’t care about their patients, mine took the time to listen to me, do reasearch on his own time and put his trust in my hands to let me try a different course of treatment for my Crohn’s.  So far it is working so thank you Dr. Potack.

I want to give thanks to my wife.  She has stuck by my side through the good days and the bad.  Through flares and scopes.  When I was sick and depressed she was there to tell me everything will be alright and to offer advice.  She supports my choice to go gluten free which was a life saver.  Thank you Heather.

I want to thank my dog.  She is a stubborn dog that likes to bark at the slightest noise in the building hallways.  But she is quick with her hello’s when I come home and is there to cuddle me when I am sad.  She gives me unconditional love when  I need it most and never asks for anything in return.  She knows when I need to be cheered up and will try to play with me.  I couldn’t ask for a more beautiful soul.  Thank you Sable.

This year I embarked on a new journey and started talking publicly about my disease.  Out of a bad flare came a new life.  I have started this blog and have met a lot of great people.  I have become more involved in helping others with IBD.  But without the help of others, I would never had taken the first step.  I have thanked many of these people before, both privately and publicly, but today is special so I will do it again…because without their support and help, I wouldn’t be doing what I do.  Thank you (in no particular order):

Kelly – www.sickgirldiary.com 

Sara – www.inflamed-and-untamed.com

Alyssa – www.loveformutantguts.wordpress.com

Stephen – http://sdempster.com/ (The Road Less Traveled)

Jackie – www.bloodpooptears.com

Amanda – www.stopthinkingstartwriting.blogspot.com

Adam – www.IhaveUC.com

Jason – www.crohnsdiseasesn.com

This is just some  of the great inspiration I have had this year.  There are so many more people to thank that I don’t have the space to thank them all.  So my biggest thank is to the IBD community.  You have all opened up your heart to me and gave me so much love and inspiration.  No one will ever really understand what it meant to me.

Day 6 – #NHBPM – News Style Post


 

National Health Blog Post Month!

 

Since the explosion of the world wide web, many people have turned to going online to look for help for problems.  For many people with IBD, going to a doctor doesn’t always help.  They treat the physical problems, sometimes, and very rarely treat the mental problems.  Because of the lack of a bedside manner, patients with IBD look for treatment online in the form of forums, social medias and medical based sites.

One new site designed to help those with many illnesses, including IBD is http://www.meddik.com.  This is a new site which just came on the scene.  It was developed by 2 medical students, one of which has a relative with IBD.  The site is a user based site but also carries links to medical articles.  The design behind the site is that you can research not just the inner workings of your disease but get first hand help from people who also suffer from the same.

Another site, with a heavier user base is http://www.crohnology.com.  This site is made so that you can connect with people who not only have your disease but live near you.  You can also ask questions to everyone on the site.  You can look up people taking the same meds as you or have the same side effects or even symptoms.

If you are looking for an upbeat site with a dose of comedy, turn to http://www.ihaveuc.com.  Adam has UC and treats his disease with comedy.  He believes that laughter heals.  He also has on his site a place to post and answer questions from other IBDers.  Adam also post informative information about the disease and the treatments used.

If you’re looking for a feminine side to IBD, there is no shortage of that either.  Sara at http://www.inflamed-and-untamed.com is probably the most recognizable face for IBD.  She talks about a lot of personal dealings with Crohn’s and having a J-Pouch.  She has become an inspiration to so many people and when she is ill, she in overwhelmed with well wishers.

Another person who is big on helping others is Kelly.  She has a page on Facebook called I-Have-A-Bad-Tummy-With-An-Optimistic-Mind-Chronic-Illness-Support.  Kelly is the face of being brave and strong with IBD as she has been very sick this year but still manages to come online to help others.  She is yet another big inspiration to many.

If you have an ostomy and love videos then check out Maggie at www,youtube.com/LetsTalkIBD.   She shows everyone that just because you don’t have part or all of your intestines doesn’t mean you can’t live life.  She shows that you can do whatever you want to do, whether it is swimming in a bikini or going to college.  Your life doesn’t stop just because you wear a bag on your side.  In fact she shows just how life is just starting after surgery.

Are you athletic?  Do you have IBD?  Well, your life isn’t over.  Brian at http://www.intenseintestines and Heidi from http://www.ostomyoutdoors.com both show that just because you have a disease doesn’t mean you can’t enjoy exercise.  Whether it is hiking, running or biking..you can do it all.

With so much help out there online doctors need to step up their game.  They can’t give the advice that any of these sites can offer.  Most doctors don’t have enough time to spend with their patients to find out what is going on in their minds.  It is no wonder why everyone turns to the internet now.