If you haven’t already, head on over to The Crohn’s Forum to check out my latest post for them about IBD Support. It can be found here.
Now that you have come back, let me update you a little more. Since the climb, I have done even more support for the IIF. This past Wednesday, the IIF had their first support/meetup group. I had helped in organizing it and getting it together. Sadly there were only 3 IBDers that showed up, but it was a start. And I do have to say that the people who did come were amazing.
One girl who came was 15 but looked 12. I thought this group would be a little out of her league when I first saw her, but after she opened her mouth I was amazed. Now, I feel that when you run a support group, you should be the inspirational person. You should be the one to install confidence in others and help guide them on their journey. However, I felt humbled when this girl spoke. She was the bravest 15 yr old I have ever met and had the best outcome on life. She clearly was not going to let IBD stop her from living.
Another person that was there was just the opposite. He had never been to a support group before and was still a little new to IBD. He hadn’t really opened up yet about it with others. Thankfully, we all have been there so we were all comforting to him. So much great advice flowed from us that I hope he feels a lot more confidence in living his life with IBD.
The third person that showed up was someone I convinced to come. I met her on the climb and I wanted to have someone who was at a point in their life where they were comfortable with their IBD to really open up. I think her story is definitely a great one and I think she helped the others in understanding this damn disease a little better.
This was the first group. We will be having one every month and I already can’t wait for the next one. Hopefully we will have more people there. I love hearing the different stories and journeys people have taken. If you are in the Northern New Jersey area, and want to attend, let me know. I will give you all the information.