Yesterday I wrote about analyzing Kelly Clarkson’s song Dark Side and how it relates to my disease. I wanted to really open up, but then I closed up and didn’t really put down in words what I wanted to say. Yes, I felt a connection to the song but I didn’t really explain to well how I have that connection. I never really said what I felt my dark side was.
This was going through my head and then last night I read a post in a Facebook group that I belong to. I really made me think of one of my dark sides to the disease. I got to thinking and actually shared my story that I have kept inside for a number of years now…and it felt good to get it out.
The post was about how this person had to stop on the side of the road to “relieve herself”. She felt ashamed to have to do this and I could see the pain in her words. Now anyone with Crohn’s disease knows this is normal and probably most of us has at one time had real bowel emergencies and have done things they wouldn’t normally do. I reassured the poster that what she did was normal for us and that she is just one of us. Other people spoke up and she then commented that she felt better thanks to her family (meaning everyone posting). Her pain made me think of my dark side story and I shared it with her. I wasn’t worried about it getting out as it is a closed group and everyone keeps the stories there. Now you are thinking I just told her story..but I am keeping all names out of this so as not to embarrass anyone.
So, now I bet you are wondering…what was my story. I thought about it long and hard and I didnt’ know if I was ready to let this one out into the general public. But I guess I should take my own advice…we have all been there. For any Crohnie reading this…I am sure you know just how I felt at the time. For anyone without IBD reading this…just know, we all go through this problem.
First a little back story to mine. What brought this on was someone saying they had to go to the bathroom on the side of the road because they had to go and there were no bathrooms around. For many people this is easy to imagine. I have been on interstates where there are nothing but trees lining the road for miles. For me though, I grew up in NYC. Every highway has numerous exits with plenty of bathrooms to go to. The only time I would think about squatting on the side of the road is when there is an accident and the traffic isn’t moving. But my time did come and I wasn’t on a highway or interstate. I was walking. It was early morning and nothing was open. I was heading to my bus and then the “Urge” came on. I knew I didn’t have time to turn around and go home. If I did I would be really late to work. The only building close by with a bathroom was the library..and it was closed. I knew I was going to have an “accident”. And then my mind raced. Off to my right was a wooded area with a lot of trees. I knew that if I went into the area, no one would probably see me. I was feet from the sidewalk but being early morning, no one was around. I had seconds to make a decision. So I headed into the brush, squatted and did what I had to do. Luckily I had my emergency toilet paper with me. After I was done, I tried to cover it up as best I could, made sure the coast was clear, and continued on to my bus.
I felt so ashamed of what I did. I knew it wasn’t the worst thing as everything left behind was biodegradable. Also, the creatures that luck around (racoons, squirrels, etc) do this everyday. But I felt like this was not normal. Yes cavemen used to do this, but we have plumbing now. It stayed on my mind all day. Over the years I would think back to that day and remember how low I felt. It has always been my dirty little secret. When I read the post last night, I thought of the story again and felt like it was time to get in off my chest.
So now you know some of my secrets and part of my Dark Side. It feels good and theraputic to tell the story and get it off my chest. My main purpose for telling it though is to not help relieve my thoughts. I made some peace with what I did long ago. My real purpose is to help others with this damn disease. It is to show them that we are all the same and have the same problems. Like I have stated so many times before….you are not alone with your disease. For all my Crohnie brother’s and sister’s, don’t ever be embarressed by your disease. Most of what you go through is normal. We have all been there at one point.