LDN – End of Week 1


Today marks the first day of my second week on Low Dose Naltrexone.  Looking back over the past week I have noticed just how rough I have had it.

First off, I just want to say, I am not trying to scare anyone off of this med.  I knew of the side effects going in and still proceeded.  I knew I was going to have the problems I am having so it isn’t like they were unexpected.  Before anyone starts any med, you should do your research and learn all you can about it.

With that said, my main side effect right now is insomnia.  What is weird though, is that I can’t tell if I am sleeping or awake.  I feel like I am in an in between state at times.  I am conscious of the time, yet I am having some weird dreams that seem real (another side effect I had heard off).  I know I dream normally I just never remember them.  On this med though, I am very conscious of my dreams and they seem like just thoughts in my head.  Like today for example.  I dreamt that I was part of the gang on the TV show How I Met Your Mother.   Lily and Marshall had bought a restaurant in Bushwick, Brooklyn and it was failing.  I sat there with them after closing to offer my professional advice on why it was failing.  Everything seemed so real to me..but hello…it is a TV show.  They aren’t real.  It is so hard to describe the feelings on here.   Also, throughout the dream, I am conscious of tossing and turning and being up throughout the night.

So, that is by far the biggest and worst side effect that I have.  But, in turn, it is causing others that I don’t like.  I have noticed my personality has changed for the worse.  I am more irritable and nasty.  I have a low tolerance and seem to get pissed off very easily now.  I know this is caused from not sleeping well.  I try to catch myself when I get in the bad mood but it is so hard to do anything.  I am just so tired all the time that I am at the point of not caring about what I say or do.

I am a fighter.  I don’t give in to things easily.  This is just another challenge for me and I won’t give in to this either.  I know this is temporary.  In another couple of weeks, things should normalize and I should start sleeping again.  I know there is an end to this.  It is that hope that keeps me going.  This isn’t permanent.

So like I said in the beginning, I am not trying to scare anyone.  All of my symptoms right now are normal for the drug.  I wasn’t prepared for the reality of it but I move on.  I don’t let it stop me.  We IBDers….we are all fighters.  Many people have gone through worse situations.  Just know, that if any of you choose to go on LDN, it is a rough road in the beginning, but from what I am told, it is worth it.  I hope to find this out myself real soon.

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2 comments on “LDN – End of Week 1

  1. LDN dreams are the weirdest, most vivid dreams I’ve ever had!! I know you know this already, but you are definitely experiencing VERY typical side effects. And you’re right…. things will definitely stabilize before too long. Chin up!!

  2. Amanda Brooke says:

    Keeping my fingers crossed for you!

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